The Epilepsy Foundation of Minnesota Blog

Neurostimulation Treatments for Epilepsy by: EFMN’s Professional Advisory Board Member Patricia Penovich, MD

Camp Oz is not just a place for kids to enjoy traditional camp activities; it allows youth with epilepsy to meet others like them and gain a sense of independence in a physically and emotionally safe environment.

Ben Stowell, a long-time camper, enjoyed these benefits and has carried both friendships and memories from camp into his adult life. It helped him become more comfortable with his epilepsy, and as he puts it, “Camp Oz taught me the only job I have is to be myself, and that’s the best thing there is.”

Sylvia Nelson frequently shares her story and invites others to do the same. After experiencing a storm of seizures in 2007, she began connecting with her legislators through EFMN’s annual Day at the Capitol. This gave her the opportunity to tell her story and educate lawmakers about living life with epilepsy.

Confronting her seizures was a long and tough process for Sarah DuCloux-Potter. She rationalized them as nightmares and naps, and went through some difficult times to get to the active and joyful life she currently lives. Accepting a new reality has allowed her to take control of both her life, and her epilepsy.

New Medication for the Treatment of Epilepsy by: Professional Advisory Board Member, Joanne Rogin, MD

Dr. Julia Valente was diagnosed with epilepsy at age 19 after more than five years of unknowingly experiencing seizures. Despite her challenges with epilepsy and its subsequent treatment, Julia persevered with her studies and graduated from medical school. She’s now a member of EFMN’s Board of Directors and is married with two young daughters. Julia’s husband, Gab Szerda, will be competing in the “Tor des Géants” race on September 10th, a 205-mile non-stop race in the Alps of Italy. Gab is using the race to raise funds in support of his wife. You can become part of Team Rise Above Epilepsy by donating to Team Rise.

The Epilepsy Foundation of Minnesota has been serving the 60,000 people living with seizures in our community for over 60 years. Educating, connecting and empowering people affected by seizures, EFMN’s programs and services reach areas outside of the Twin Cities Metro area including the communities of Duluth, Fargo, Rochester, and St. Cloud.

Seizures can strike at any moment. Imagine living your everyday life seizure-free, and then one day you are faced with a life-altering diagnosis. After receiving news that their daughter Jacqui was diagnosed with epilepsy at age 14, the Mattison family learned to cope with her seizures and find support through EFMN.

Misty and JP Rennquist’s daughter, Julia, was diagnosed with epilepsy three years ago. Although fully aware of her seizures, Julia is a rambunctious, funny and very sweet five-year-old. The Rennquist family found support through EFMN early on and celebrates Julia’s epilepsy journey every year at the Rise Above Seizures Walk.

Steve has given generously to EFMN to ensure that kids with epilepsy experience the fun and friendships of a week at Camp Oz. Although Camp Oz was not available when Steve was diagnosed with epilepsy as a child, he now visits every year to experience the contagious joy of the campers.