I had my first seizure in January of 2020 and was formally diagnosed with epilepsy in April of the same year. In my twenty years of life, I have had 23 surgeries on my brain, heart, stomach, and lungs- all of which are attributed to an underlying condition called hydrocephalus.
Read MoreNo two epilepsy journeys are the same. Especially when it occurs with another medical condition, like it does for Austin Thomas. Austin has lived most of his 22 years with autism, but seizures became part of his life at 17 years old when he was diagnosed with epilepsy. “Austin faces
Read MoreBy: Dr. Kathleen Rieke, CentraCare The last two articles in this series focused on epilepsy self-management. They encompassed topics such as managing medications, maximizing communication with providers, and taking an active role in seizure management. This final topic focuses on an often overlooked but profoundly important element to the health
Read MoreThe Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Tammy Sinkfield-Morey, DNP, RN, PHN, CRRN,
Read MoreBeginning on September 1 in Fargo/Moorhead, and finishing on October 2 in the Twin Cities, the epilepsy community unites to walk in solidarity with one another. After years of coming together to Rise Above Seizures, the Walk name changed in 2021 to the United In Epilepsy Regional Walks. With a
Read MoreThe Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Yafiet Bezabih is a member of
Read MoreAdvocacy plays a key role in spreading awareness and reducing the stigma surrounding epilepsy, and advocacy works best when there is a connection between people. Walk captain Carrie Buck knows seeking out connections with others who understand the struggle of epilepsy is the first step in creating more awareness. She
Read More“We walk to be united in the epilepsy community,” EFMN walk captain, epilepsy fighter and advocate Chris Poshek says. And his words perfectly sum up the magic of the EFMN walks: creating unity and providing hope. Chris, who recently turned 50, was diagnosed with epilepsy at the age of 30.
Read MoreCindy Nelson and Dr. Jeff Britton care for epilepsy patients in Rochester, MN. They have both cared for patients with very severe epilepsy cases, working hard each and every day to try and control seizures for their patients. The many years of caring for and seeing the difficulties epilepsy patients
Read MoreThe Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Douachee Lee is a member of
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