2019 Annual Report
Dear Friends of EFMN,
Thank you for your involvement with us and the support you give to the epilepsy community. The work we do at the Epilepsy Foundation of Minnesota (EFMN) is centered on improving the lives of those affected by epilepsy. 2019 was a year in which we led the fight to overcome the challenges of living with epilepsy and accelerate therapies to stop seizures, find cures, and save lives.
Below, you will see how Information Services, the central hub of our organization, offers tools to individuals and families to overcome challenges, navigate their epilepsy journey, and gain independence.
Sincerely,
Glen Lloyd
Executive Director
(photo below)
Patrick Burns
Board President
(photo below)
Epilepsy does not affect any two people the same. Whether it’s seizure type, medication side effects, lifestyle changes, or other challenges, each person impacted by epilepsy has their own unique journey. That’s why providing one-to-one support through Information Services is necessary.
Information Services is the core of the work we do and connects people to all the programs we offer.
From education to connection, we have programs for everyone — those directly affected by epilepsy, or a teacher who has a student with seizures. Moreover, our Seizure Smart Trainings are tailored to the audience, whether it be a workplace, school, or senior care facility.
2019 EFMN Program Impact
Advocacy
106 individuals attended Day at the Capitol
Camp Oz
159 children experienced the summer camp
Shining Stars
407 youth and teens participated in the Shining Starts program
Seizure Smart Trainings
16,095 individuals trained to be Seizure Smart
Connect Groups
711 attendees at Connect Group events
Seizure Smart Training Attendees Include:
In 2019, Information Services fielded 655 requests from people seeking help in their epilepsy journey.
Conversations included questions from individuals with epilepsy, caregivers, community groups, and schools throughout Minnesota and eastern North Dakota. For many, Information Services is the starting point of their relationship with the Epilepsy Foundation of Minnesota.
“The entire EFMN organization has been the foundation of my success, allowing me to show people living with epilepsy that it is not a barrier to reaching their goals in life.”
Kevin Reed, Program Participant
Most people reach out to learn about our programs and services, but those who are newly diagnosed may have a list of questions about epilepsy and seizures. Parents ask how to make their child’s school a safer place in the event they have a seizure. Adults with epilepsy want to learn about medication side effects, alternative treatment options, or seizure detection and treatment devices from our Information Services staff. Our staff includes Regional Coordinators and the Information Services Senior Coordinator, Debbie Leone.
2019 Board of Directors
Brandon Megal,
President
Rhea Nelson Rock,
Vice President
Bill Atwell,
Secretary
Mike Britten,
Treasurer
Matt Brokl (deceased)
Patrick Burns
Mark Devaraj
Rachel Dyrud
Tim Feyma, MD
Anjie Flowers
Zack Frisk
Erica Holzer
Tayler Johnson
Jennifer Lavalley
Glen Lloyd
Wendy Osterberg
Sharon Roberg-Perez
Heidi Rosati
Brett Spark
Mike Sund
Julia Valente, MD
Trisha Zeller
2019 Professional Advisory Board
Joan Asmus, BSN, LSN, NBSCN
Anne Barnwell, MS, CRC, CPRP
Jeannine Conway, PharmD, BCPS
Jason Doescher, MD
Armantina Espinosa, MD
Rupert Exconde, MD
Tim Feyma, MD
Douglas Heck, PhD
Kimberly Heckman, MD
Thomas Henry, MD
Ilo Leppik, MD
Katherine Nickels, MD
Patricia Penovich, MD
Kathleen Rieke, MD
Joanne Rogin, MD
Alexandra Sequeira, MD
Tess Sierzant, MS, RN, ACNS-BC, CNRN
Tammy Sinkfield-Morey, DNP, RN, PHN, CRRN
Thaddeus Walczak, MD
Annual Report Financial Summary
Review the 2019 Statement of Activities and Statement of Financial Position
Review Financial Summary