Author: Lee

What have we learned about COVID and epilepsy and its effects on seizures among adults and children? An update with two years of information.

“I was so excited to be at Camp Oz because it was the first time I had ever stayed away from my parents. I wanted to go to Camp Oz because I wanted to make new friends and I love to be independent,” says Shreya.

As the parents of a young son with epilepsy, we are humbled by the individuals and organizations who have become a part of our lives and have had a hand in helping raise our child. Our son, Jack, now ten years old, was diagnosed with Lennox-Gastaut Syndrome, a severe form of epilepsy, at the age of four.

Our journey with epilepsy began about 35 years ago when Marcia had a grand mal seizure.  

That journey has been difficult many times, when promising medications suddenly lose their effectiveness and break-through seizures occur.  The journey begins anew whenever a change in medication is warranted.  

When I graduated as a Registered Nurse 15 years ago, the online resources like nursing apps for your phone, epilepsy websites, and Facebook groups weren’t quite as easy to come by as they are now.

Seizures were scary to me. There were medications that needed to be given daily, certain diets to help with seizures and then there were the medications to give if my client was having a seizure! And that may have been their only diagnosis or only just one of them.

I had my first seizure in January of 2020 and was formally diagnosed with epilepsy in April of the same year. In my twenty years of life, I have had 23 surgeries on my brain, heart, stomach, and lungs- all of which are attributed to an underlying condition called hydrocephalus.

Day Two of Family Camp came and went with some truly serious imagination and creativity. Campers kicked things off with just seven small chunks of clay but after lots of rolling, twisting, and slicing, transformed a baby food jar into a work of art fit for a museum. Under the

We had some great kids and families from around the state, and even Wisconsin, sign in for the first day of EFMN’s 2021 Virtual Family Camp! Every kid was extremely excited to start digging through their Camp in a Box and finally find out what they were going to make

This is really important information to know because what to try or not try can make seizures last longer and possibly worse. Because if they’re ever with a person with epilepsy and they start to see them have a seizure, they need to know what makes them safer and what does not.

Hi, my name is Kyah Altiere.  For the past 5 ½ years I have been a counselor at a substance abuse clinic.  I never realized how much I had in common with people living with opiate addictions.  Stay with me here, I’ve never used any illicit drugs.  Our clinic is