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Rare Epilepsies Virtual Connect Group

January 17, 2023 @ 6:30 pm - 7:30 pm

A space for people impacted by a rare epilepsy or complex diagnosis to meet others and talk about life updates, challenges, and successes with others who understand the rare epilepsy/complex diagnosis journey. This includes parents and caregivers to children with rare epilepsy, as well as adults. This is a group looking to create peer-to-peer support and connection. For more information, please contact Lisa Necastro at lisa.necastro@efmn.org or 330.518.7810.
In order to ensure we can provide the best experience possible, we need a few things from you. Before registering for this group, please make sure you have the following:
  • A device that enables you to communicate with others - through a computer, tablet, or phone. A camera is preferred so that you can see others and they can see you, but it is not required.
  • Pair of headphones and a quiet space in your home. This is to ensure confidentiality and to provide you with the best experience as a member of the group.
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Details

Date:
January 17, 2023
Time:
6:30 pm - 7:30 pm
Event Tags:

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Rare Epilepsies Connect Group 1/17/2023



















EFMN is asking demographic questions to have a better understanding on who we serve. Although all questions are required, there is always a "Prefer not to answer" option if you choose to keep this information private.

The options for demographic questions are in accordance to the US Census Bureau.
Emergency Contact
We are collecting Emergency Contact information for these events. Should a seizure or other medical situation arise for you during the group time, we need to have access to an emergency contact, and your physical location address. This information is not shared outside of EFMN staff unless they need to contact EMS services to respond to your home to provide medical care.





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